Downloads and links
New recommendations for prostate cancer patients during the COVID-19 pandemic (posted here April 2, 2020)
The National Comprehensive Cancer Network (NCCN) has issued a set of guidelines for prostate cancer care during the COVID-19 pandemic. Beverly Nicholson, RN, CNS, forwarded a document describing these guidelines to us in her capacity as a member of the board of directors of the California Prostate Cancer Coalition. NCCN is a not-for-profit alliance of 30 leading cancer centers devoted to patient care, research, and education.
Beverly also forwarded a draft of a scholarly article by a team of radiation oncologists from the U.S. and U.K. who are recommending a new framework for making decisions about radiation therapy for prostate cancer patients. They propose protecting patients, care providers and society through increased use of telemedicine consultations, as well as avoiding, deferring and shortening radiotherapy to the safest extent possible. The two University of Michigan Health lead researchers who developed the framework have dubbed it RADS — Remote visits and Avoid, Delay, and Shorten radiotherapy.
“Emerging treatments for metastatic castration-resistant prostate cancer: Immunotherapy, PARP inhibitors, and PSMA-targeted approaches” — article published in the journal Cancer Treatment and Research Communications, vol. 23 (2020)
“Prostate Cancer-Specific PET Radiotracers: A Review on the Clinical Utility in Recurrent Disease” — article published Practical Radiation Oncology (January-February 2018)
Prostate Cancer — An Informative Guide for the Patient: You.
The 60-page 2019 edition of this informative publication contains information about the disease, early detection, diagnosis, treatment, side-effects, plant-based nutrition, post-treatment recurrence and resources for assistance. Content was prepared by our group’s cofounder, Harold Honeyfield. We are indebted to the Woodland Community and Senior Center for underwriting the cost of printing the guide, which is available free of charge at our meetings.
Awareness of Prostate Cancer document
California Prostate Cancer Coalition newsletter (9-page PDF file)
Prostate cancer resources available from local libraries:
Financial assistance from ZERO for patients with advanced prostate cancer (.rtf text file)
Information for Men With Newly Diagnosed Prostate Cancer, by Jes Siiteri, urological physician assistant (PDF file)
Prostate Cancer Awareness: overview of prostate cancer by Harold Honeyfield, August 2012 (Microsoft Word file)
Prostate Cancer Research Institute 2013 conference summary
Prostate Health Index (PHI) test offers potential as prostate cancer detection method (2012 news release, Microsoft Word file)
The Second Opinion: a San Francisco nonprofit organization in which more than 60 board-certified physicians from multiple cancer-related specialties offer expert treatment advice free of charge
Timm Medical Technologies, manufacturer of vacuum devices to compensate for erectile dysfunction (.txt plain text file)
“Optimizing Sexual Function Outcomes in the Prostate Cancer Patient” — 2014 talk by urologic surgeon John P. Mulhall of the Memorial Sloan Kettering Cancer Center in New York (YouTube video; running time: 59:27)
We recommend these websites for additional information about prostate cancer.
American Cancer Society — information about prostate cancer prevention, detection, treatment and new research developments
AnCan, the Answer Cancer Foundation — an advocacy, navigation and support group offering numerous resources. AnCan hosts several virtual prostate cancer groups with specialized focus, including high-risk, recurrent and advanced prostate cancer; low- and intermediate-risk prostate cancer; active surveillance; and even a group for men under age 60.
Axumin is a recently developed, FDA-approved molecular imaging agent that, when used with PET imaging, can identify suspected sites of prostate cancer recurrence. The link lists three Sacramento-area imaging facilities at which Axumin imaging is available.
California Prostate Cancer Coalition — nonprofit organization that advocates legislation and funding for prostate cancer research and treatment services
Cancer Beast — a nonprofit organization that seeks to make gene sequencing available as a standard of care for all cancer patients
CancerCare — free, professional support services for people affected by prostate cancer, as well as prostate cancer treatment information
Centers for Disease Control and Prevention — information about prostate cancer from the U.S. Department of Health & Human Services
CureTalks — online discussions about prostate cancer and other types of cancer
MaleCare men's cancer survivor support, information and advocacy
National Association for Continence — organization that conducts education, collaboration, and advocacy, and offers advice, support and links to specialists
National Cancer Institute — comprehensive information about prostate cancer from the federal government's principal agency for cancer research and training
National Coalition for Cancer Survivorship — advocates for advancements in funding and policies that influence cancer research and treatment; online resources include a "Cancer Survival Toolbox"
Prostate Cancer Foundation — funds prostate cancer research and advocates for more efficient investment of governmental funds for cancer research; website includes resources for patients and family members
Prostate Cancer Research Institute — sponsors patient education resources, including a telephone helpline, a newsletter and an annual conference on medical developments
Prostate Conditions Education Council — content-rich website with resources to increase awareness of prostate cancer and its treatment options for all stages of the disease
The Prostate Net — patient education and advocacy organization that encompasses an interactive online network
The Second Opinion — free, comprehensive second opinion service in San Francisco for adults diagnosed with cancer
Sleep Help — a Seattle-based sleep health education resource with information about management of nocturia, the medical term for recurrent sleep-interrupting urination that many men with benign prostatic hyperplasia (BPH) and prostate cancer experience
Urology Care Foundation — this affiliate of the American Urological Association advances urologic research and education and offers numerous patient information resources
Us TOO — International Prostate Cancer Education & Support Network, which offers patient information on diagnosis, treatment options, clinical trials, a help line and an online prostate cancer community, and publishes the authoritative Hot Sheet newsletter
ZERO – The End of Prostate Cancer — advances research and encourages action with the goal of eradicating prostate cancer, and offers educational programs and support to men and their families